update after our neurologist appt
We are back from our visit to the neurologist. The office is located in a brand spankin new pediatric medical building in our part of town. The neurologist's office is located directly across the hallway from the chapel, which I found disturbing and comforting all at the same time.
There may be a chance that K has had these seizures before while sleeping. Which, hello, how would we ever know? But based on a specific set of Q & A...we discovered he occasionally has had similar weird feelings when he wakes up. She said there are some seizures that happen only when asleep.
In retrospect, I kept him in bed with me the night he had his seizure, so I could keep a closed eye on him while sleeping. He did wake me up that night saying that his arm felt weird, I just told him he must have slept on it funny and told him to go back to sleep. So much for keeping an eye on him...just another point in my quest for Mother of the Year.
We will have to have future separate appointments for the MRI and EEG, which K was disappointed about, since he was hoping he could do it all today. He thought his CT scan was especially cool, because it is like a little bit of star wars/star trek technology.
What he had was a partial complex seizure and they suspect he may have "Benign Rolandic Epilepsy", though we won't be able to say for sure until hey finish more tests.
They have a prescription for Diastat, which is sort of like an epipen for seizures. Again it is an only in case of emergency, since it has to be given rectally.
I believe that this was just a misfiring of the brain's wiring. I'm not convinced of this nighttime seizure theory. Perhaps I am in denial, but it hard to believe there is something wrong with a kid that just seems to be so okay.
Tomorrow, the baby and I will head to the developmental pediatrician to figure out what we can do (or not do) about him.