Thursday, November 19, 2009
Our oldest turns 10 tomorrow. He also celebrates one year seizure (and medication) free this week. To mark this fabulous occasion, he said he wanted a brain cake.....so hear ya go. Don't let anyone tell ya that you don't have a lick of brains.
Wednesday, November 04, 2009
What is that saying about home? Something about it being humble and no other place like it? I can't remember because I haven't slept since very well.
KC the wonder kid is BAAACK.
After this morning initial estimate of being at 90 %, he ate something and and then started climbing and ripping up the room.
His diagnosis .... metabolic acidosis. And as I said before, his history of licking and putting everything in his mouth -- made the doctors concerned that he got into some kind of toxic substance. The pediatrician said his blood levels were close to normal today, but considering his behavior we were fine to be released. Her only concern was that his body did not react to treatment as expected. Therefore if there are any future incidents, we'll have to investigate a cause.
For the two older boys -- they are in quarantine upstairs. Both tested negative for strep and influenza, but they are taking Tamiflu as a precaution because of KC's hospitalization.
The love and generosity of friends has inspired and overwhelmed me. A friend is bringing my exhausted soul dinner tonight. Another friend picked the baby and me up from the hospital so we wouldn't have to pile all the boys in the van. The messages on Facebook, email, texts, phone -- I have clung to every word of hope, prayer and laughter. Bits of joy - it is what I live for.
There are meowing noises coming from the hospital bed next to me. The sweetest sounds I do believe I have ever heard. KC is back to about 90 %. He still has low energy and is content to be bedridden, but is past the whiny fussy stage he was in yesterday.
Yesterday I rejoiced when he started moaning and fussing, because it was a 100% improvement from being near unconscious. When someone can stick him with a needle and draw blood without him even opening his eyes, it is bad.
This morning he is charming the nurses with his sideways smile and meowing his answers back to them, as if he's pulling off some big joke on them. But we've got his number.
We are in a holding pattern this morning until the doctors can have a last look at his lab tests from this morning. The toxicology tests have become negative, which rules out one of the initial fears that he got into something he shouldn't have.
Last night he ate for the first time in four days -- rice, applesauce and something like 12 packages of saltine crackers.
God has been so good to us. His presence has shined in the kind words of friends and talents and generousity of the staff.
And today -- we will figure out what we are going to do about going home. The oldest two have the flu fevers that hover around 103-104 if you let the Motrin slide by a a few minutes. I don't know that we should let the baby back into the plague just yet. Off to order His Royal Kittyness some food.....