Someone sent me a prayer she said/written specifically for K.
Somehow made me feel better.
I cancelled my Cleveland appointment to get a second opinion. Even though the appointment was with the Ped. Neurology Division Chief, and those nice ladies that answered the phone got me squeezed in before the end of this month.
I've realized that on the other side of town is Emory and their pediatric neurology folks. Though I can't get in until JANUARY.
We still have to follow up with our nurse practitioner at Child Neurology Associates in the meantime. I called to schedule his next appointment and asked if I could see a real doctor this time instead of a nurse practitioner. Not that s/he would be any better, smarter, kinder. I would just feel better if a second set of eyes looked at his info. A not so nice lady that answers the phone was very inconvenienced by me because it would require her to fill out a form for it and I'd have to state my reason. You know how sometimes you get luck of the draw with your call....well I got the a rotten one. She indicated that they may deny my request to switch doctors. So much for partnering with us in the care of our son.
In the meantime, I have this book written by the the Johns Hopkins folks. It has educated me on a ton of stuff. After reading it, I feel more confident in our decision to hold off on the meds.
Baby KC will be cycling into the county school system soon to begin more therapy. The developmental pediatrician confirms he does have Apraxia. We will have to continue to monitor him during his school years because many kids have learning disabilities.
He has the comprehension of a 3.5 year old, but the expressive language skills of a 21 month old to a 2 year old, which really, I knew he was about a year or more behind on his speech.
He also took another hearing test yesterday. The audiologist passed him through on the main part but will have to see him back for more testing since he either can't hear the softer sounds or his attention span is short.
ugh....this is the short version of the update.
maybe a more creative blog entry another day.
By the way, our middle son makes us proud. Let me just say this loud, Q has no medical or developmental issues. The teacher's assistant says he eats every piece of food on his lunch tray. We are so very proud. Every little bit of joy helps.